It has been a very tough week for me, but writing on here is helping. I went into hospital and was very poorly. With sepsis in my kidneys. Then came The ME Monster. It caused me to go back about 3 years of progress in a few days. My seizures took a turn for the worst and were very scary.
We made the decision to opt to go home, whilst still being acutely unwell, because the heat, noise and constant buzzing of hospital equipment was driving my ME made. Every minute I have been battling the complexities of ME. Yet still, I’m astounded at how I dealt with it when I couldn’t speak or move.
Keep going forward. You are dealing with ME incredibly. One day at a time does it. We will pray for your recovery from this setback to be on its way very soon.
With our sincere thoughts,
Donnamae & Alannah
Bless you Jessica. Tiz so unfair on you – please have patience & faith. You have come SO far this year – you achieve SO much – you have an amazing heart – an angelic spirit & are A Huge Inspiration for So many. This phase Will Pass And you will get back all you’ve achieved recently.
Congratulations on marrying your soulmate (?) & walking down that aisle – you have so much to live for. I pray you will find your inner strength again and fight off the gremlins of this hideous disease.
Sending you healing energies & love & light for you, Samuel & all your family xxx ???
Thank you ?
Hey baby girl. So we both have been having kidney issues and severe infections. Not fun and they worry our kidneys will shut down. I begged them to please not put me in the hospital. They gave me a few days and if I showed improvement I could stay home. Thank God. You just remember to rest and enjoy that quiet and drink as much as you can. I never thought about it until you said it but this too has affected my seizure disorder. It is not as severe as yours but I recognized I was having the small seizures. Laying in the quiet is desensitizing…which I do often…lights low or sunglasses on, no sound by a small fan to circulate the air to calm the senses. I am proud of you hon. I know how tough it is. Sounds, bright lights, etc affect me too as I am so sensory from the cfs/me. Just know I love you, am praying for you and am sending wonderful thoughts to you. Just take care of you and I know Samuel is taking good care of you and rest so your body can heal. One of the sad parts of ME and all the issues. We pay a huge price sometimes. Love dani