The Two Faces of M.E
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Donnamae Maida
I’ve been reading some of your blogs. The pain and suffering you’ve been going through is so similar to what my daughter Alannah has been suffering for 4 years. The way you described living life in your room, the ceiling, writing a book in you head, your body too ill to move. She’s 22 now. The isolation has been the worst. Sunglasses have turned to Eye masks, ear plugs and no talking… the biological changes cannot be seen and haven’t been figured out yet.
The loss of everything….., freedom, “boyfriend”, friends, communicating with family, visitors, reading, writing, listening to music, watching tv, independence. The sensory overload alone is torturous…, the list goes on. The way you described living in limbo….. yes, no one can comprehend the extent of suffering. You are right, you can’t look back and mourn. ME/CFS doesn’t allow that either. You must live today and look forward.
Alannah’s Babci always says “Better days are coming” and we know they are… either in this world or in the next. Bless your family… ours too, The family suffers from heartache and a feeling of powerlessness while still trying every treatment possibility, advocating to friends, family, the general public, and mostly to the uneducated doctors and nurses in the medical field. We pray for a cure or universal successful treatment! God Bless You Jessica! Continue this fine and good work for yourself, Alannah and the 25% of beautiful persons who are seriously ill with ME/CFS.
We are with you. ? Love to You, from Alannah
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I’ve been reading some of your blogs. The pain and suffering you’ve been going through is so similar to what my daughter Alannah has been suffering for 4 years. The way you described living life in your room, the ceiling, writing a book in you head, your body too ill to move. She’s 22 now. The isolation has been the worst. Sunglasses have turned to Eye masks, ear plugs and no talking… the biological changes cannot be seen and haven’t been figured out yet.
The loss of everything….., freedom, “boyfriend”, friends, communicating with family, visitors, reading, writing, listening to music, watching tv, independence. The sensory overload alone is torturous…, the list goes on. The way you described living in limbo….. yes, no one can comprehend the extent of suffering. You are right, you can’t look back and mourn. ME/CFS doesn’t allow that either. You must live today and look forward.
Alannah’s Babci always says “Better days are coming” and we know they are… either in this world or in the next. Bless your family… ours too, The family suffers from heartache and a feeling of powerlessness while still trying every treatment possibility, advocating to friends, family, the general public, and mostly to the uneducated doctors and nurses in the medical field. We pray for a cure or universal successful treatment! God Bless You Jessica! Continue this fine and good work for yourself, Alannah and the 25% of beautiful persons who are seriously ill with ME/CFS.
We are with you. ? Love to You, from Alannah