Dear Bug…I’m Missing The day everything changed. The first time this happened was in 2006, where I entered total paralysis in my body. I did not get movement back until 2010. It was just one of my many body failures. The problem was at first I was too exhausted to move then I couldn’t […]
Dear Bug…I’m Missing Read More »
As I start to get back into the world from my thirteen year hiatus, I notice that the world treats me differently to how it did before I got ill…because I am disabled. I noticed it most this week, when three events happened that made me realise the problem. Before I became unwell, I wouldn’t
Why am I different? Read More »
Why is it that just because we suffer with an invisible disease do we have to constantly prove our mental health status? Or it goes the other way round for people who ARE mentally unwell, they have to prove they are mentally unwell enough to receive help or understanding! It’s ludicrous! Then there is the
Saving Myself and All That Jazz Read More »
The delicate balance between a crash and a success. It’s a fine line and can feel like you are walking a tightrope but it’s a tightrope that persists to be with you every second of everyday. Each person has some form of a tightrope but it is very different for those who are chronically or
Getting the Balance Right Read More »
Ever since I was a little girl I dreamed of having a family. A child. Children. Unconditional love for a little person. Even when I got ill, I was naive because I always held onto the fact that I would just get better, that is what doctors do, right?! I held onto this idea through
My Ultimate Question Read More »
It’s been a while since I have posted a blog…my greatest apologies! My health has not been great so I’m trying to start again this new year with my second week of antibiotics on top of prophylactic antibiotics. (I’ve been on the latter for a while to try and break the cycle of UTIs that
Back in 2012, after seeing The World of One Room on YouTube and Facebook, Jen Brea approached me to see if I’d like to feature in a film documentary, (at the time called Canary in a Coal mine) about M.E. I agreed and what a journey it has been! It was renamed Unrest to give
Unrest Premiere and Parliamentary Screening… Read More »
I had a massive surprise when a charity called Freedom for Wheels decided to do just that, giving freedom to me through a set of wheels! As described in a previous blog The Power of Wheels, I found my wheels a couple of months ago due to a fluke phone call. Since that
Thank You Freedom for Wheels… Read More »
Three years ago, I started a project called #FortheFirstTime and I documented my firsts since I had become unwell on my Facebook page The World of One Room. The experiences I was having was as if I had started life again. When you are seriously chronically unwell, it’s important to not lose hope of what
For the First Time…. Read More »
