Disability

My Terrible Experience at A&E

The past couple of days haven’t gone to plan. Valentines Day and Samuel was in A&E then yesterday it ended up being me. I’ve had a very sharp stabbing pain in my back which has been making it challenging to take a deep breath and I woke up yesterday morning hardly able to breathe due […]

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Being a Chronically Ill Writer is Hard

So I’ve now been blogging on and off for ten whole years. I started my writing on my Facebook page and continued it on my website, but I’ve been writing for pretty much the entirety of my chronic illness journey (nearly 16 years now!), I just spent a lot of that time writing in my

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I ended up being taken into hospital by ambulance

Oh my life. It seems somewhat ironic that on the day I was about to finish off my latest blog on being on the other side of an emergency, that I ended up being taken into hospital by ambulance with severe chest pain. It was odd because yesterday the tightness in my chest following a

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A Ridiculous Blog on a Ridiculous Week

So if I were to say that in the space of one week, the Taylor-Bearman’s had been to A&E three times, once via ambulance with an internal bleed, once for a potential secondary bleed and the other time a doctor rang and said to get to a&e for urgent blood screening on the same day

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Do People Know What I mean When I Say “I’m in Pain”?

After writing this blog post on my phone nearly three weeks ago, I ended up having to scrap it because my brain was so fogged that I couldn’t think… Or move… Or breathe without being in immense suffering. I had just got the news that a much- awaited consultant appointment with rheumatology had been cancelled.

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I am Disabled and I Still Matter

I’m used to living a very restricted life and even I’m struggling to manage. Before the pandemic hit us, I had started to venture outside more often and had managed to go in a shop. As you’ll see in my latest book, I didn’t even enter a shop for YEARS… I literally didn’t go into

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What I Hope the Pandemic Has Taught Us

This pandemic – and particularly the various lockdowns – has suddenly given the world a very slight dip into the ocean of what it is like to live with M.E.. I have lived this kind of an existence for over a decade (well fifteen years if you must know). Although my life has changed immeasurably

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The Reality of Christmas

2020 has been a horrendously hard year for everyone. The PM briefing on Saturday was just the tip of the iceberg. Having been promised a Christmas with family was one thing, but it was nothing short of cruel to have all those plans scuppered less than a week before the day. But this is not

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The Invisible Scars I Face From My Medical Treatment

I’ve been having to really pace my energy levels for the past few weeks, hence why I’ve been so quiet… Sorryyyyyy! For the past six months, my physical health has been challenging to say the least. My body just doesn’t seem to be able to manage too well with what I ask it to do.

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